Thursday, April 24, 2014
Symposium Registration When and Where to "Check In" at the Conference
PANDAS/PANS Symposium registration will be available Friday (4/25) evening and Saturday (4/26) morning.
A physical ticket was not distributed with your online registration. All you will need to do is go to the registration table and we will access your information. There will be signage in the hotel to help direct you.
Friday Registration
Register/check-in on Friday evening from 7 pm - 8:3o pm in the front lobby.
Saturday Registration
Register/check-in on Saturday morning will begin 7 am at the Embassy Ballroom Entrance.
The PANDAS/PANS Symposium will begin on Saturday, 4/26 at 8 am in the Embassy Ballroom.
A physical ticket was not distributed with your online registration. All you will need to do is go to the registration table and we will access your information. There will be signage in the hotel to help direct you.
Friday Registration
Register/check-in on Friday evening from 7 pm - 8:3o pm in the front lobby.
Saturday Registration
Register/check-in on Saturday morning will begin 7 am at the Embassy Ballroom Entrance.
The PANDAS/PANS Symposium will begin on Saturday, 4/26 at 8 am in the Embassy Ballroom.
Friday, February 7, 2014
2014 PANDAS/PANS Symposium
Agenda:
Morning Session - Latest Research and Treatment Practices - Q&A to Follow
Dr. Susan Swedo, Lead Investigator into PANDAS/PANS at the NIMH
Topic: "PANDAS, PANS and Other Forms of Childhood-onset Obsessive Compulsive Disorder" - Latest research into the syndrome, treatment and recovery
Dr. Jennifer Frankovich, Pediatric Rheumatologist, Director of PANS Clinic at Stanford University
Topic: PANS-A new definition of pediatric acute neuropsychiatric onsets – Latest findings and new treatment protocols at the Stanford PANS Clinic
Dr. Melanie Burgos-Alarcio, Pediatric Neurologist, Leading PANDAS/PANS Physician
Topic: The Brain and the Immune System: Newer Concepts of Encephalopathy
Dr. Michael Cooperstock, Chief, Division of Infectious Diseases and Rheumatology Department of Child Health, Columbia, MO
Topic: "Pediatric Acute-onset Neuropsychiatric Syndromes: What are the Questions?" - A look into the efforts to delineate what is not known - particularly, but not exclusively, from an infectious diseases standpoint - and how the children and their families help researchers and providers work towards finding solutions.
Amy Smith, Nurse Practitioner, Integrative Medicine, Director PANS Program, Hill Park Medical Center
Topic: Integrative Approaches in the Treatment of PANDAS and PANS
Afternoon Breakout Training and Discussion Sessions
For Medical Professionals - Open Discussion - Sit with the panel (Drs. Swedo, Frankovich and Burgos-Alarcio) to discuss your questions and concerns about diagnosing and treating PANDAS/PANS.
For Education Professionals - Lecture and Discussion - Dr. Jamie Candelaria-Greene to discuss specific recommendations for accommodations, assessments, compensatory strategies, and other supportive services.
For Parents - Session #1 Symptom Support with Dr. Margo Thienemann - A tool kit of skills for parents to cope with OCD, Anxiety and Mood Issues with children at onset thru healing. Open dialogue discussions will follow.
For Parents - Session #2 Family Survival and Recovery with Dr. Eric Fier – A tool kit of how to heal and rebuild your family due to the trauma of PANDAS and PANS. Open dialogue discussion will follow.
Closing Session for All Attendees
Advocacy Efforts - Legislative and Educational
Personal Experiences - Overcoming the Odds and Healing
Men’s Group - Small group meeting with Dads to discuss your unique challenges . This group will be led by Dr. Eric Fier.
Featured Speakers:
Morning Session - Latest Research and Treatment Practices - Q&A to Follow
Dr. Susan Swedo, Lead Investigator into PANDAS/PANS at the NIMH
Topic: "PANDAS, PANS and Other Forms of Childhood-onset Obsessive Compulsive Disorder" - Latest research into the syndrome, treatment and recovery
Dr. Jennifer Frankovich, Pediatric Rheumatologist, Director of PANS Clinic at Stanford University
Topic: PANS-A new definition of pediatric acute neuropsychiatric onsets – Latest findings and new treatment protocols at the Stanford PANS Clinic
Dr. Melanie Burgos-Alarcio, Pediatric Neurologist, Leading PANDAS/PANS Physician
Topic: The Brain and the Immune System: Newer Concepts of Encephalopathy
Dr. Michael Cooperstock, Chief, Division of Infectious Diseases and Rheumatology Department of Child Health, Columbia, MO
Topic: "Pediatric Acute-onset Neuropsychiatric Syndromes: What are the Questions?" - A look into the efforts to delineate what is not known - particularly, but not exclusively, from an infectious diseases standpoint - and how the children and their families help researchers and providers work towards finding solutions.
Amy Smith, Nurse Practitioner, Integrative Medicine, Director PANS Program, Hill Park Medical Center
Topic: Integrative Approaches in the Treatment of PANDAS and PANS
Afternoon Breakout Training and Discussion Sessions
For Medical Professionals - Open Discussion - Sit with the panel (Drs. Swedo, Frankovich and Burgos-Alarcio) to discuss your questions and concerns about diagnosing and treating PANDAS/PANS.
For Education Professionals - Lecture and Discussion - Dr. Jamie Candelaria-Greene to discuss specific recommendations for accommodations, assessments, compensatory strategies, and other supportive services.
For Parents - Session #1 Symptom Support with Dr. Margo Thienemann - A tool kit of skills for parents to cope with OCD, Anxiety and Mood Issues with children at onset thru healing. Open dialogue discussions will follow.
For Parents - Session #2 Family Survival and Recovery with Dr. Eric Fier – A tool kit of how to heal and rebuild your family due to the trauma of PANDAS and PANS. Open dialogue discussion will follow.
Closing Session for All Attendees
Advocacy Efforts - Legislative and Educational
Personal Experiences - Overcoming the Odds and Healing
Men’s Group - Small group meeting with Dads to discuss your unique challenges . This group will be led by Dr. Eric Fier.
Featured Speakers:
Dr. Susan Swedo
Chief Pediatrics and Developmental Neuroscience Branch at the NIMH
Dr. Jennifer Frankovich
Pediatric Rheumatologist, Director PANS Clinic, Lucile Packard Children's Hospital Stanford
Dr. Melanie Alarcio
Pediatric Neurologist, Leading PANDAS/PANS Physician
Dr. Michael Cooperstock, MD, MPH
Chief, Division of Infectious Diseases and Rheumatology Department of Child Health, Columbia, MO, Professor Emeritus, Univ. of Missouri School of Medicine
Amy Smith
Nurse Practitioner, Integrative Medicine,Director PANDAS/PANS Program, Hill Park Medical Center
Dr. Eric Fier
Child, Adolescent and Adult Psychiatry, Leading PANDAS/PANS Physician
Dr. Jamie Candelaria-Greene
Education Specialist, Visiting Scholar, UC Berkeley
Dr. Margo Thienemann
Child & Adolescent Psychiatrist
Diana Pohlman
Executive Director, PANDAS Network
Sarah Jane Alleman
PANDAS Mom, Advocate, and Dedicated Blogger
Personal Testimonials by Lance Smith, Vanessa Vann, and other PANDAS/PANS children
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